Table 2 Patient Questionnaire and clinical measures

HAEMO-QoL-A Total index Score^†

35.3 (14.9)

35.8 (17.4)

  Physical function

48.6 (11.6)

42.3 (13.9)

  Role Function

31.3 (23.0)

26.1 (23.3)

  Worry

27.0 (25.5)

25.8 (26.0)

  Consequence of bleeding

29.4 (23.1)

31.7 (26.5)

  Emotional impact

56.5 (18.6)

59.1 (19.7)

  Treatment concerns

23.6 (25.0)

30.1 (30.5)

MOXFQ Total score

50.5 (24.2)

45.8 (24.7)

  Social

6.9 (4.0)

5.3 (4.0)

  Pain

9.9 (4.9)

9.5 (5.1)

  Walking/ standing

16.4 (8.0)

14.5 (8.0)

NPRS average ankle pain in the past 6 months

5.0 (2.6)

5.5 (SD,2.5)

Ankle HJHS (left/ right)*

6.0 (3.0; 10.0)/ 5.0(2.0; 9.0)

HA 6.0 (3.0;10.0)/ 6.0 (2.0;9.0)

HB 5.0 (2.0; 9.0)/ 3.0 (0;6.0)*

4.5 (1; 12.5/ 3.0 (0 9.5)

Ankle haemarthropathy (one/both)

103 (48.1%)/ 104 (48.6%)

16 (55.2%)/ 13 (44.8%)

Elbow haemarthropathy (one/both)

77 (36%)/ 26 (12.1%)

7 (24.1%)/ 3 (10.3%)

Knee Haemarthropathy (one/ both)

55 (25.7%)/ 15 (7%)

8 (27.6%)/ 4 (13.8%)